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Our Story - Grand Rapids .1K

Kevin Friar

It is with a heavy heart that we share the passing of Kevin Friar, the oldest “Friar Boy”, on April 2, 2018. This kid touched us all in so many ways. We loved his quick wit and ability to make us all laugh. He did not lose his fight against Duchenne Muscular Dystrophy, he showed us how to live with it. The battle continues to find a cure. God bless Kevin, his brother Kyle, sister Colleen, parents DeAnne and Mike and all the boys that fight to win against this awful disease. Kevin was 18 years old.

Mike and DeAnne Friar, Grand Rapids, MI are the parents of two boys, Kevin and Kyle, with Duchenne. Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures. Parent Project Muscular Dystrophy’s mission is to end Duchenne: accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community. More than a dozen West Michigan families have boys with this deadly disease.

Friends and Family of the Friar’s created the GR.1K to raise funds for research to find a cure for Duchenne. Take part in being the cure by joining us the first Saturday of November at 12pm.

FOX 17 – GR .1K Race to the B.O.B to End Duchenne

FOX 17 – The GR.1K aims to End Duchenne