Mike and DeAnne Friar, Grand Rapids, MI are the parents of two boys, Kevin and Kyle, with Duchenne. Duchenne Muscular Dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures. Parent Project Muscular Dystrophy’s mission is to end Duchenne: accelerate research, raise our voices in Washington, demand optimal care for all young men, and educate the global community. Close to a dozen West Michigan families have boys with this deadly disease.
Friends and Family of the Friar’s created the GR.1K to raise funds for research to find a cure for Duchenne. Take part in being the cure by joining us the first Saturday of November at 12pm.